Sickle Cell 101

“You should never be transfused for a number. You should be transfused for how you feel.”

Your baseline matters. Your symptoms matter. Talk to your care team about what your numbers mean for you.

Save this for your next appointment

13 years on hydroxyurea, and Latia says she has no regrets.

Latia started taking hydroxyurea at 12 years old. Back then, she was mostly worried about her hair falling out and swallowing bigger pills. Now, half her life later, her biggest side effect is daily fatigue, some days harder than others. But she’s also seen way fewer pain crises and hospitalizations since starting.

Her advice if you’re considering it: talk to your hematologist, look at your labs together, and do your own research too. It can take a few months to feel the effects, and side effects look different for everyone, but for Latia, the benefits have outweighed the risks.

Have you or your child been on hydroxyurea? Share your experience in the comments.

The parts of sickle cell care nobody puts on the record. 🗣️

The final 3 episodes of Tough Conversations about Sickle Cell Care are out now.

Featuring: Dr. Amy Cox, Jimi Olaghere, Kyle Smith, and Dr. Halimat Olaniyan.

Watch on YouTube (link in bio) or stream on Spotify, Apple Podcasts and wherever you listen.
More at sc101.org

There’s more than one way a therapy can be approved by the FDA and some pathways are designed to move faster. These special pathways help get life-changing treatments to communities who need them most.

FDAApproval

This is a place to say what isn’t typically said. 🗣️

The first 6 episodes of Tough Conversations about Sickle Cell Care are out now.

Featuring: Dr. Amy Cox, Jimi Olaghere Jimi Olaghere, Kyle Smith Kyle ⏰ and Dr. Halimat Olaniyan.

Watch on YouTube (link in bio) or stream on Spotify, Apple Podcasts and wherever you listen.
More at sc101.org

There’s more than one way a therapy can be approved by the FDA and some pathways are designed to move faster. These special pathways help get life-changing treatments to communities who need them most.

Part 2 coming soon.

FDAApproval