National Scleroderma Foundation Tri-State Chapter

🔗: https://ow.ly/tFew50ZLvSE

Navigating life with a rare disease can be challenging, but support is closer than you think.

The National Scleroderma Foundation’s local chapters bring hope and support right to your neighborhood. 🏡

Discover your local chapter and see how you can get involved today! 🌎

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, November 4, 2026

Time: 7:00 pm - 8:30 pm EST

Open Discussion

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/RjdQjg6_QtO26J6ttffhbA

All are welcome! Join us!

Own your health journey through self-advocacy. Watch this inspiring workshop led by Cami Novachek, as she talks about how each person living with scleroderma can take control of their health journey.

Copy and paste this link into your web browser to watch now: https://scleroderma.org/self-advocacy.

The Greater Rochester Scleroderma Support Group took part in Assemblyman Josh Jensen's 5th Annual Family Health and Wellness Fair on Saturday, October 3rd, at Greece Town Hall.

The event provided an excellent chance for the members to educate and spread awareness about scleroderma to the public.

It was great to network, make new friends and gain new members .

Shout out to Cathy Ribert, Erin Vess, Edith Diane Reynolds, Jannita Kegler, and Marilyn Sibley, who represented the Tri-State Chapter.

This free event was organized in partnership with Rochester Regional Health and the University of Rochester Medical Center, was open to everyone.

A big thank you to Assemblyman Jensen for always including us, it’s a pleasure working with him and his team and having their support in promoting the mission of the National Scleroderma Foundation.

Friendly reminder…the Metro 5 Support Group Meeting is this Wednesday, October 7th at 7pm. There is still time to register and join us!

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, October 7, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/kQgBOfm7Qy24I35bOoGXvA

All are welcome! Join us!

Hope in Progress: University of Rochester Research Visit

On October 3, members of the National Scleroderma Foundation’s Tri-State Chapter had the opportunity to visit the University of Rochester and spend time with PhD candidate Gayathri “Gaya” Guru Murthy and her team.

The visit was a wonderful opportunity to learn, ask questions, connect with the research team, and see firsthand the dedication that goes into advancing our understanding of scleroderma.

Gaya reminded us that “it takes a village” and that collaboration is essential to moving research forward. Her passion and commitment left us feeling inspired and, most importantly, hopeful.

We are incredibly grateful to the University of Rochester team for welcoming our scleroderma community and for their vision of building a regional scleroderma center to provide focused care and support to the Rochester community and beyond.

Together, we are building hope and progress. 🩵

Buffalo NY Support Group🩵
Join us Saturday October 10th 10am-1pm at the Eggertsville Library in Snyder NY

🩵 Thank you, Connecticut! 🩵

What a beautiful day at our Connecticut Walk, held in honor of Melissa Marquis. Thank you to the Mayor of New Britain for your support of our walk and the scleroderma community.

Thank you to everyone who came together to walk, donate, volunteer, and show their support for Melissa and our community.

Every step helps raise awareness, support those affected by scleroderma, and bring hope to our community.

Thank you for walking with us and making this day so meaningful. 🩵

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, October 7, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/kQgBOfm7Qy24I35bOoGXvA

All are welcome! Join us!

On this day, we carry forward the memory of those we lost and the strength of those who served.

We will never forget. ❤️🤍💙