MND Association

MND Association

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Every day we support people affected by motor neurone disease. Because with MND, every day matters. Motor Neurone Disease moves fast. We campaign for better care.

It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We’re here for everyone who needs us. Engagements deemed inappropriate will be deleted and users may be blocked. This includes, but is not limited to, the use of swearing, bullying, racist, sexist or homophobic language, and any other inappropriate behaviour.

14/10/2026

This party conference season, we met with over 150 MPs, councillors and peers across the political spectrum so people affected by MND are heard by those who can make real change happen. Here's a message from our Director of Engagement, Richard, to say thank you for the part YOU played.

EXPERTS-ALS study drops ropinirole after interim analysis 14/10/2026

"When a drug shows no benefit, it’s discarded and we go again and again until we hit on something that works." shared Mike Rogers, our Director of Research, following the latest results from the EXPERT-ALS study.

The second set of results from the study have shown that the drug ropinirole is not likely to be an effective treatment for people with MND. The researchers will stop testing this drug in new study participants, and people in the study who are currently taking it will stop.

You can read more here. 🔗

EXPERTS-ALS study drops ropinirole after interim analysis The EXPERTS-ALS study will continue without ropinirole after participants' blood samples showed no likely benefit for MND. The study is still recruiting to the other treatment arms and identifying new candidate drugs to add to testing.

Photos from MND Association's post 13/10/2026

Motor neurone disease, or MND, strips away the life we love. But what actually is it? Here are the basics.

Share this graphic to your story and help us raise awareness.

11/10/2026

Motor neurone disease, or MND, is fatal and rapidly progressing. Here are the facts.

10/10/2026

Lorraine is a dancehall queen, but now she can't join in. MND has stripped away those precious moments on the dance floor.

Learn more at.🔗mndassoc.org/life-stripped-away

09/10/2026

Go behind the scenes of our new advertising campaign.

Watch to learn more about the concept, how we brought it to life across TV, digital and billboards, and some of the creative choices we made along the way.

09/10/2026

We want to know what makes you, you?

08/10/2026

Tahira is their green-fingered Grandma, but her hands can't grip a trowel. Motor neurone disease has stripped away the life she loves.

07/10/2026

Motor Neurone Disease traps you inside your body, stripping away the life you love. Help us stop it.

03/10/2026

Sir Kevin Sinfield and the 7 IN 7 team — take a bow. 🧡

7 ultramarathons in 7 days. £1.3 million raised for MND charities.

Thousands of supporters showing up every step of the way.
To our incredible community, volunteers, people affected by MND, everyone who donated, everyone who ran, and everyone who cheered them on: thank you.

What you have all achieved this week is extraordinary. The money raised, the conversations started and the awareness created will help bring us closer to a world free from MND.

And to Sir Kev and the whole 7 IN 7 team, thank you, thank you, thank you. 🧡

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